Our mission is to empower the lives of people living with Spina Bifida, through:
Spina Bifida is one of the most common, permanently disabling birth defects in America. It occurs when the neural tube, which forms the spinal cord and vertebral column, does not close completely during the first several weeks after conception. Each year about 1,500 pregnancies are affected by Spina Bifida in the US.
Living with Spina Bifida is different for every person. The spectrum of disability ranges from mild to severe. People with spina bifida often need many surgeries over their lifetime and have lifelong disabilities, including paralysis in the lower parts of the body, mobility challenges, and loss of bladder and bowel control.
Most children with spina bifida can and do live long productive lives, thanks to advanced medical techniques and support systems.
SBRN has resources on numerous topics related to Spina Bifida and living with disabilities.
SBRN offers individuals with spina bifida and other disabilities a convenient, enjoyable way to learn and network online. We offer peer-led support groups as well as interactive workshops and seminars
SBRN has funding to help people living with spina bifida in New Jersey who are experiencing financial difficulties due to the cost of emergent or basic needs. The SBRN Community
SBRN's Newsletter
Watch our Spina Bifida animation
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